Friday, July 31, 2009

July 31, 2009

We missed a day and were sorry that many of you were tuned in and didn't get an update, so here we go. A lot has happened over the past two days and we are excited and worried all at the same time. Gabe's lungs are doing wonderful! The new mode on the ventilator along with rigorous suctioning of his airway has completely opened up his left lung and even his right looks better. For us, this is amazing news. Now he will remain on the ventilator instead of going back to the Russian cosmonaut hat. The other good news is that Gabe had his first eye exam today and the doctor said it was good. Our nurse "C" was high fivin' the eye doctor with the news and it made us feel good. Nurse "L" tonight said that he tracks things in front of him really well and nurse "B" taped these shapes onto the inside of his isolette so he has something to look at.
Also found out that his heart looked great on the ultrasound. They said that he has what is called a PFO, can't remember exactly what it means right now. But basically there is a hole between your right and left atriums and it is open when you are inside and then it closes once you are out. However, in about 25% of people, it never closes. His has not closed, which is no big deal. They just said that he can't scuba diving, which is just fine with me. That is the least of my worries right now.

Then they dropped the bomb that sent my stomach into knots immediately. He is scheduled for biopsy surgery on Monday morning at 8:30 a.m. So they will keep him on the ventilator since they need him on that anyway for the surgery. During the procedure which will take place in an operating room, they will take a small portion of the liver and send it off for analysis and then it should take about two days to get the results. Those will be two long days. The results will tell us the plan from there. I don't want to get to far ahead of myself as I usually do and worry about things I don't need to. We just need to take this one step at a time right now and I will fill you in as we go instead of worry you about a bunch of maybes.

On a different note we have moved Kayla in with us for a hopefully more permanent stay over at "Ronald's House", as Kayla calls it. Today she got to play on all the wonderful play structures that they have here and she was in heaven. She also loves the activity room with all it's toys and of course there is the "Nemo" fish tank that she loves. She will run herself dizzy chasing the fish around and around the tank. It's hilarious to say the least. We love how no matter what's happening, Kayla is constant entertainment. Thanks for tuning in and we will talk to you soon.


Meghan said...

Thanks for keeping us updated! Justin and I send our love from kauai! Hope to see you as soon as we get back!!!

g.kling said...

wonderful news! and we are certain that the biopsy will go well...little man is a fighter (obviously), so there's no way he's going to let a little surgery keep him down! Nice photo of you, Jesse, with your beautiful son! Love you guys! G&S

MorelloFamilia said...

Thank you for making the time during your impossible schedules to update your blog so frequently! We love reading the great news you continue posting. Thank God for Gabe's strength and many blessings to the little man come Monday as well as always. We're keeping the prayers going for you.

xoxo The Morello's

Adrianne said...

Jesse, please don't be too hard on yourself. We are so lucky that you update us as often as you do!!! Besides, the post from the 29th was so wonderful it held me over an extra day. :)

That is such great news about Gabe's lungs. I'm so glad they tried out that new setting on his ventilator. What a difference.

It sounds like Ronald's house is set up just right an energetic 2 year old. Somewhere close by where she can run all around is perfect.

Monday is going a big day, but not to big for SuperG. I have a feeling he hasn't even begun to use all of his superpowers yet.

We love you and we are with you!

The Leahy's said...

Happy 1 month birthday Gabe!!!! Get some rest, Monday's a big day for you! We love you!!!!