Tuesday, September 22, 2009

September 21-22, 2009




I'm sitting here staring at the computer and my mind has completely blanked out. I just spent the last few days with Gabe and I cannot think of a singal thing to tell you all about him. Oh my gosh...It's offical...I've lost it!!!


Think...think...think....


It used to be that we'd sit down to blog and we didn't even know where to begin. There was just so much going on with Gabe, but lately things have been pretty mellow. This is of course a good thing. Other than waiting for his plural effusions to dry up; his lungs to get stronger so he can be extibated; and weaning him off of his happy juices; there really aren't any other major things to report. Wow! This is awesome!!! We are of course still concerned about his chylothorax drying up on its own. If the lymphatic system can heal on its own, this usually happens 4-6 weeks after all feeds have been stopped. I believe Gabe is now going on about 2 weeks of starvation (he is getting TPN and Lipids intravenously but that just isn't the same as real food), so fingers crossed we should start to see some signs of improvement in the next 2 to 4 weeks. If his plural effusions are still present after 6 weeks of no feeds then we may need to look into a medication called octreotide. I really hope we don't have to go down this path. The poor little guy has had so much junk pumped into him over the last 12 weeks, I really don't want his body to have to process one more thing. Gabe is starting to have more "good" days then bad. We are beyond excited about this, but still have our guard up at the same time. We have seen him go backward so many times, we are still a little cautious when things are going well.


Since Gabe is no longer being poked and prodded all day long, he now spends his time snoozing; watching his mobile; jamming to his spa music; getting massages to help with his tight muscles; taking sponge baths; trying new ways to lay in bed, like on his tummy and his sides; looking around at the boring NICU room; and listening to mommy and daddy blabber on and on about how adorable he is. I know I've said this before, but Bubba is seriously cutest little boy I have ever laid my eyes on. Now that he is on less sedation he has more awake time, and it's so awesome to see him with his eyes open. He is starting to do more "normal" baby things and this is really exciting! We know that there are still many hurtles he must overcome, but considering what the little dude has conquered thus far is his 12 weeks of life, I have faith that Gabriel can handle any obstacle thrown his way.


Go Super G go!!!




2 comments:

cmacdon72 said...

So glad things are going well!!! Makes me very happy.. Mom and Dad take a deep breath and relax for a moment.. xxxoooxxoo

We love you guys.. And are with you every step of the way!

Gary & Sara said...

this is wonderful news!
love, G&S